The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Kansas City, KS

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 42 doctor with experience in Neurofibromatosis Type 1 (NF1) near Kansas City, KS. Of these, 9 are Experienced.

Location
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42 providers found

    Children's Mercy Kansas City

    2401 Gillham Rd, 
    Kansas City, MO 
     (3.4 miles away)
    Languages Spoken:
    English

    Mohammed Ilyas is a Neurologist practicing medicine in Kansas City, Missouri. Dr. Ilyas is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Seizures, West Syndrome, Epilepsy, and Epilepsy in Children.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology | Pediatric Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology | Pediatric Radiology
    2401 Gillham Road, 
    Kansas City, MO 
     (3.5 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Rachel Berkovich is a Radiologist and a Pediatric Radiologist practicing medicine in Kansas City, Missouri. She has been practicing medicine for over 18 years. Dr. Berkovich is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Familial Porencephaly, Choroid Plexus Cyst, Arachnoid Cysts, and Cerebellum Agenesis Hydrocephaly. Dr. Berkovich is board certified in American Board Of Radiology (Pediatric) , American Board Of Radiology/Diagnostic Radiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Radiology | Pediatric Radiology
    Radiology | Pediatric Radiology
    2401 Gillham Road, 
    Kansas City, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Laura Dinneen is a Radiologist and a Pediatric Radiologist practicing medicine in Kansas City, Missouri. Dr. Dinneen is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Dr. Dinneen is board certified in American Board Of Radiology (Pediatric) , American Board Of Radiology/Diagnostic Radiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Learn about our expert tiers
    Radiology | Pediatric Radiology
    Radiology | Pediatric Radiology
    2401 Gillham Road, 
    Kansas City, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Peter Winningham is a Radiologist and a Pediatric Radiologist practicing medicine in Kansas City, Missouri. Dr. Winningham is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Dr. Winningham is board certified in American Board Of Radiology (Pediatric) , American Board Of Radiology/Diagnostic Radiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Radiology | Pediatric Radiology
    Radiology | Pediatric Radiology
    2401 Gillham Road, 
    Kansas City, MO 
     (3.5 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Grace Mitchell is a Radiologist and a Pediatric Radiologist practicing medicine in Kansas City, Missouri. She has been practicing medicine for over 17 years. Dr. Mitchell is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Dr. Mitchell is board certified in American Board Of Radiology (Pediatric) , American Board Of Radiology/Diagnostic Radiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Radiology | Pediatric Radiology | Neuroradiology
    Radiology | Pediatric Radiology | Neuroradiology
    2401 Gillham Road, Radiology Department, 
    Kansas City, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Timothy Zinkus is a Radiologist and a Pediatric Radiologist practicing medicine in Kansas City, Missouri. Dr. Zinkus is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Ganglioglioma, Hemolytic Disease of the Newborn, and Neurofibromatosis Type 1 (NF1). Dr. Zinkus is board certified in American Board Of Radiology (Pediatric) , American Board Of Radiology/Diagnostic Radiology , American Board Of Radiology/Neuroradiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    2401 Gillham Road, 
    Kansas City, MO 
     (3.5 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Jason Tobler is a Radiologist practicing medicine in Kansas City, Missouri. He has been practicing medicine for over 18 years. Dr. Tobler is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Dr. Tobler is board certified in American Board Of Radiology/Diagnostic Radiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Radiology | Pediatric Radiology
    Radiology | Pediatric Radiology
    2401 Gillham Road, 
    Kansas City, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Brian Dunoski is a Radiologist and a Pediatric Radiologist practicing medicine in Kansas City, Missouri. Dr. Dunoski is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Hypoplasia of the Tibia with Polydactyly and Neurofibromatosis Type 1 (NF1). Dr. Dunoski is board certified in American Board Of Radiology (Pediatric) , American Board Of Radiology/Diagnostic Radiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Pediatric Radiology
    Pediatric Radiology
    2401 Gillham Road, 
    Kansas City, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Emily Orscheln is a Pediatric Radiologist practicing medicine in Kansas City, Missouri. Dr. Orscheln is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Infantile Pneumothorax, Pneumomediastinum, Increased Head Circumference, and Intussusception in Children. Dr. Orscheln is board certified in American Board Of Radiology (Pediatric) , American Board Of Radiology/Diagnostic Radiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Radiology | Pediatric Radiology
    Radiology | Pediatric Radiology
    2401 Gillham Road, 
    Kansas City, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Neil Mardis is a Radiologist and a Pediatric Radiologist practicing medicine in Kansas City, Missouri. Dr. Mardis is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Dr. Mardis is board certified in American Osteopathic Board Of Radiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Radiology | Pediatric Radiology
    Radiology | Pediatric Radiology
    2401 Gillham Road, Radiology Department, 
    Kansas City, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    William Carter is a Radiologist and a Pediatric Radiologist practicing medicine in Kansas City, Missouri. Dr. Carter is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Dr. Carter is board certified in American Board Of Radiology (Pediatric) , American Board Of Radiology/Diagnostic Radiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Neuroradiology
    Neuroradiology

    The University Of Kansas Hospital

    4000 Cambridge St, 
    Kansas City, KS 
     (4.2 miles away)
    Languages Spoken:
    English

    Kyle Werth is a Neuroradiologist practicing medicine in Kansas City, Kansas. Dr. Werth is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses X-Linked Intellectual Disability, Siderius Type, Aicardi-Goutieres Syndrome, PEHO Syndrome, and Mohr-Tranebjaerg Syndrome.

    Cambridge Tower A

    3825 Cambridge Street, 
    Kansas City, KS 
     (4.1 miles away)
    Experience:
    40+ years
    Languages Spoken:
    English, Italian
    Accepting New Patients
    Offers Telehealth

    Paul Camarata is a Neurosurgery provider practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 40 years. Dr. Camarata is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Meningioma, Radiation Induced Meningioma, Neurofibromatosis Type 2 (NF2), Awake Craniotomy, and Thrombectomy. Dr. Camarata is board certified in American Board Of Neurological Surgery, Neurological Surgery - 1998. Dr. Camarata is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    The University Of Kansas Hospital

    4000 Cambridge Street, 
    Kansas City, KS 
     (4.2 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Benjamin Powers is a Hematologist practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 19 years. Dr. Powers is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Adult Soft Tissue Sarcoma, Liposarcoma, Synovial Sarcoma, Angiosarcoma of the Scalp, and Tissue Biopsy. Dr. Powers is board certified in American Board Of Internal Medicine, Medical Oncology - 2014. Dr. Powers is currently accepting new patients.

    Hematology Oncology | Oncology | Neurosurgery
    Hematology Oncology | Oncology | Neurosurgery

    Medical Pavilion

    2000 Olathe Boulevard, 
    Kansas City, KS 
     (4.3 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English, Turkish
    Accepting New Patients
    Offers Telehealth

    Tolga Tuncer is a Hematologist Oncology specialist and an Oncologist practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 32 years. Dr. Tuncer is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Glioblastoma, Glioma, Oligodendroglioma, and Bone Marrow Aspiration. Dr. Tuncer is board certified in American Board Of Internal Medicine, Medical Oncology - 2013 , United Council For Neurologic Subspecialties, Neuro-Oncology - 2011 , and American Board Of Internal Medicine, Internal Medicine - 2008. Dr. Tuncer is currently accepting new patients.

    Medical Pavilion

    2000 Olathe Boulevard, 
    Kansas City, KS 
     (4.3 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jacob Brubacher is a Hand Surgeon practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 16 years. Dr. Brubacher is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Carpal Tunnel Syndrome, Dupuytren Contracture, Rhizarthrosis, Nerve Decompression, and Fasciotomy. Dr. Brubacher is board certified in American Board Of Orthopaedic Surgery, Surgery Of The Hand - 2019 and American Board Of Orthopaedic Surgery, Orthopaedic Surgery - 2018. Dr. Brubacher is currently accepting new patients.

    Pediatrics
    Pediatrics

    Ophthalmology

    2401 Gillham Rd # O, 
    Kansas City, MO 
     (3.0 miles away)
    Languages Spoken:
    English

    Diana Healy is a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Healy is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1).

    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    Children's Mercy Kansas City

    2401 Gillham Rd, 
    Kansas City, MO 
     (3.4 miles away)
    Languages Spoken:
    English

    Keith August is a Hematologist and an Oncologist practicing medicine in Kansas City, Missouri. Dr. August is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Acute Lymphoblastic Leukemia (ALL), Leukemia, Infantile Neutropenia, Embryonal Tumor with Multilayered Rosettes, and Bone Marrow Aspiration.

    Hematology | Oncology
    Hematology | Oncology

    Children's Mercy Kansas City

    2401 Gillham Rd, 
    Kansas City, MO 
     (3.4 miles away)
    Languages Spoken:
    English

    Kevin Ginn is a Hematologist and an Oncologist practicing medicine in Kansas City, Missouri. Dr. Ginn is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Medulloblastoma, Embryonal Tumor with Multilayered Rosettes, Glioma, Hepatoblastoma, and Bone Marrow Aspiration.

    Medical Genetics | Pediatrics
    Medical Genetics | Pediatrics
    2401 Gillham Rd, 
    Kansas City, MO 
     (3.4 miles away)
    Languages Spoken:
    English

    Eric Rush is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Rush is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Osteogenesis Imperfecta, Albright's Hereditary Osteodystrophy, Zellweger Syndrome, and Micrognathia.

    Showing 1-20 of 42

    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor near Kansas City, KS?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Kansas City, KS?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Kansas City, KS?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Kansas City, KS?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Kansas City, KS?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Kansas City, KS?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Kansas City, KS?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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